Tag: dysautonomia

At nature’s pace

Written 31st March 2024:

I measure my progress by nature’s timescales now.  When I first got sick I stayed in the realms of human time.   Will I be back at work tomorrow?  No?  Next week?  No?  End of the month? After Christmas?

From my bed I watched the beech tree slowly turn from green to yellow to orange and then reluctantly give up brown shrivelled leaves to the wind.  I saw a few stubborn leaves hang on into winter storms and wondered if I would still be in bed when the buds burst.

I heard the geese arrive, unseen.

Now, downstairs at last, through the window I see the buds on the apple tree that I can not yet reach. How far will I be able to walk when the apples ripen?  Will I have got to the end of the drive by then?

The chiffchaffs call incessantly, reminding me that they have been to Africa and back while I remained within these four walls.

The swifts were departing last summer when I fell ill. How will I be when they return?  And when they leave?  And next year, and the next?

I move at a slower pace now, life turning with the seasons, healing with forces that cannot be rushed.

Today’s update….on a good day I can now walk to the apple tree and the end of the drive. The swifts aren’t back yet (at least, I’ve not seen or heard any).

Long covid

Things have been very quiet here on my blog recently.

A promotion at work a couple of years ago led to me being very busy and consequently not inspired to write or paint regularly.

And then, in August 2023 I caught covid and never really recovered. The initial infection was not too bad; a mild cough, fatigue that had me in bed for a few days, nausea and digestive discomfort, headache. Then I started to slowly get better. Or so I thought. One week after my symptoms started I worked from home and felt OK, had a walk around the block in the evening, felt fine.

The following day I was back in bed. I gradually improved again but two weeks in, a day after I tested negative, I ended up in A&E. I’d gone for a really short walk around the block for 10 minutes when my heart started racing and my breathing went weird. I had chest pains and dizzyness. We called an ambulance, the paramedics checked me out, and said all my vital signs were normal, but to go to A&E for further tests. Blood tests, chest xray, ECG – all normal.

Again, I gradually improved, although I had no energy, couldn’t work and couldn’t walk further than the garden.

Then at the end of September I ended up calling an ambulance again, this time the paramedics took my blood pressure and heart rate standing as well as lying down. My blood pressure dropped on standing, and my heart raced as if I was running uphill.

After that trip to A&E the symptoms got worse and I was pretty much bedbound for 3 months.

In January I started to slowly, slowly improve.

Now I can walk around the garden, I can make myself simple meals, I can read a bit and do some art. I need frequent rests, lying down several times a day, and my evenings are spent back in bed.

I’d like to get back to writing, to blogging, to document life as it is now, and hopefully record my recovery journey. And to share my art, as at the moment I find drawing and painting less tiring than writing.

I couldn’t paint for 5 months. In March I started doodling and colouring in. I had to limit art time to 10 minutes at a time initially, as I felt so tired afterwards. But it was worth it for the joy I felt doing it.  Here is that first piece, it started off as an abstract doodle and ended up looking a bit like a starfish. Pen and Inktense pencils.

Initial abstract doodle
Finished.  I really like the background.